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Help Us Make a Difference

Join our mission to support teens and young adults with Sotos Syndrome. Together, we can foster social development through recreational activities, providing a brighter future for those in need.

Upcoming Events

Starry Night Talent Showcase
Starry Night Talent Showcase
Sep 30, 2025, 2:21 PM – 4:21 PM
Riverfront Theater,
789 River Rd, DeForest, WI 53532, USA

Our Purpose

Our Mission

Living Tall with Sotos is a dedicated charity focused on supporting individuals with Sotos Syndrome. We offer recreational activities designed to promote social development, provide essential information, and accept donations for continuous growth.

Our nonprofit organization strives to enhance the lives of teens and young adults affected by Sotos Syndrome through community engagement and partnership initiatives. Our fundraising efforts often involve physical events that encourage participation and awareness.

Initiatives

Our projects focus on creating inclusive recreational opportunities for those with Sotos Syndrome while fostering a sense of community and belonging that promotes personal growth.

Events

Community Gatherings

We organize various events aimed at bringing together individuals and families affected by Sotos Syndrome, providing them a platform to socialize, share experiences, and build friendships.

Partnerships

Mutual Support

We collaborate with local businesses and organizations to enhance our outreach and fundraising efforts. By partnering together, we can create a larger impact and spread awareness about Sotos Syndrome.

Volunteer

Join Our Team

Volunteers play a vital role in our organization, helping to execute events and programs. Your involvement helps us reach more young people and create opportunities for personal and social growth.

Follow Us

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