Overview

Description of Programs and Services

 

 

Standing Tall with Sotos is dedicated to empowering teens and young adults with Sotos syndrome to live productive, successful, and enriched lives. Through joyful experiences, our programs foster social growth, personal development, and lasting confidence.

 

 

The Problem

 

 

Individuals with Sotos syndrome often face significant challenges, including developmental delays, social difficulties, and isolation from their peers. As they enter their teenage and young adult years, these challenges can become more pronounced, leading to limited opportunities for independence, fewer social connections, and reduced quality of life. Families frequently struggle to find programs tailored to this age group, leaving many young people without the support and enriching experiences they need to thrive.

 

 

The Solution

 

 

Standing Tall with Sotos provides a supportive, inclusive environment where participants can build life skills, expand their social networks, and experience joy through recreational activities. By creating opportunities for learning, connection, and adventure, we reduce isolation, encourage independence, and give participants the tools and confidence to succeed in society.

 

 

Our Programs

 

 

• Summer Camps – Week-long camps designed for fun, skill-building, and social bonding through activities such as arts, outdoor adventures, and group challenges.

• Destination Trips – Organized travel experiences that expose participants to new cultures, environments, and learning opportunities, helping them gain confidence and independence.

• Recreational Activities & Workshops – Ongoing local events such as sports, arts, music, and social gatherings to foster community engagement and personal development.

• Family & Caregiver Support – Opportunities for families to connect, share resources, and find encouragement within a supportive community network.

 

 

 

How We Will Accomplish This

 

 

• Individualized Approach – Activities are adapted to the unique abilities of each participant to ensure inclusivity and success.

• Trained Staff & Volunteers – Compassionate leaders and mentors guide participants, offering encouragement and modeling social and life skills.

• Safe and Supportive Environments – Every program is structured to promote both independence and safety, balancing fun with appropriate support.

• Community Partnerships – Collaborations with local organizations, venues, and service providers allow us to expand opportunities and access resources efficiently.